No. All study-related tests and procedures are provided at no cost.
All personal information is replaced with an ID number. Your data and samples are stored on a secure Mount Sinai server with limited access to ensure confidentiality.
No. It is illegal for health insurance and employers to discriminate using genetics under a federal law called GINA.
Participating might help you or your loved one find answers regarding your or their disease. You or your loved one will contribute to research that may improve diagnosis and treatment for others with rare diseases.
Yes. Participation is voluntary. You or your loved on may withdraw at any time without it affecting your or their medical care.